First-hand experience of living with AHDH
What a 22y old says about PAGS
There is actually huge issue like adults with autism, finding that they have autism really like late in life, because they learn appropriate skills through hard work so like if you could help if you could identify those in childhood and help them to learn skills they will learn to be adult like ‘you could pass for a neurotypical for that long’.
I think the differences are:
in secondary school you really learn how to communicate with others and work with others and work as a team and learn from them
for University I think point of focuses is more on learning how to act independently so I think I think most autistic people would have problems in secondary school if they work through them I think they'd be OK in college because they would have been because they might be quite good at handling themselves independently, they may have problems with planning, but they would have to rely on others but if they can't get through secondary school I think if you can't learn how to work with others it's way harder to learn to work independently.
I don't think they be able to move out if they didn't know how to work with others so it's a huge block in terms of continuing on with the rest of your life if you can't learn these skills in secondary school which is why I think it's good that you're targeting schools in particular.
“Definitely, if this is one of the only tests of its kind and yeah definitely, I think this could be huge in the future, especially also now because it's becoming more important, because there's more awareness now then it is was 10 years ago.
Links what we do from observation working on a child and we are on the same page with the EHCP outcomes and then with proper evidence-based questions linked to stages of development, it means that what targets you come up are more likely to be real and meaningful and show the impact on the interventions you had.
It allows you to explicitly pick out and celebrate skill the students are using which as a teacher might take them for granted, for as you might think is a norm. Even now I'm reflecting back over periods in the week when I was thinking things were awful, when I actually do look down and pick up what it's really important, I can celebrate progress which I may not even thought that before.
Lead Consultant for Personalised Learning and Differentiation
I think there are very interesting ideas and concepts; the data will be very useful in ensuring that the schools have targeted interventions really accurately.
I think it's most important it is the accuracy, then they are not targeted in isolations and then not just trying to pick up something and then deal with it; they have an absolute accurate assessment of this student this is what we need to target to help the student to progress academically and vocationally and in life skills.